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Ezra S

@ezra.zone

creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.

1314 Posts2068 Follower583 Folgt
Paris Marx@parismarx.com · 2d ago

getting tired of people on the left still launching substack newsletters after all the reporting on that company in recent years

C.H. Romatowski@chromatowski.bsky.social · 3d ago

“PASC [Long Covid] is estimated to affect up to 5.8 million children” in the US, surpassing asthma as the most common chronic condition in American children.

Postacute Sequelae of SARS-CoV-2 in Children

The coronavirus disease 2019 (COVID-19) pandemic has caused significant medical, social, and economic impacts globally, both in the short and long term. Although most individuals recover within a few days or weeks from an acute infection, some experience longer lasting effects. Data regarding the postacute sequelae of severe acute respiratory syndrome coronavirus 2 infection (PASC) in children, or long COVID, are only just emerging in the literature. These symptoms and conditions may reflect persistent symptoms from acute infection (eg, cough, headaches, fatigue, and loss of taste and smell), new symptoms like dizziness, or exacerbation of underlying conditions. Children may develop conditions de novo, including postural orthostatic tachycardia syndrome, myalgic encephalomyelitis/chronic fatigue syndrome, autoimmune conditions and multisystem inflammatory syndrome in children. This state-of-the-art narrative review provides a summary of our current knowledge about PASC in children, including prevalence, epidemiology, risk factors, clinical characteristics, underlying mechanisms, and functional outcomes, as well as a conceptual framework for PASC based on the current National Institutes of Health definition. We highlight the pediatric components of the National Institutes of Health-funded Researching COVID to Enhance Recovery Initiative, which seeks to characterize the natural history, mechanisms, and long-term health effects of PASC in children and young adults to inform future treatment and prevention efforts. These initiatives include electronic health record cohorts, which offer rapid assessments at scale with geographical and demographic diversity, as well as longitudinal prospective observational cohorts, to estimate disease burden, illness trajectory, pathobiology, and clinical manifestations and outcomes.

publications.aap.org

Jessica Ellis@baddestmamajama.bsky.social · 3d ago

if you are ignoring a minority saying they desperately need your solidarity because “the government says you don’t have to anymore,” it is unlikely that you’re on the right side of the issue.

airplane ian - abolish ICE@airplaneian.com · 2w ago

Contrail: Building an ATproto lexicon for aviation I recently returned from a mostly offline trip and was catching up on some digital tinkering when I decided to add AT Protocol publishing to this blog and... https://ianservin.com/2026/07/26/contrail-building-an-atproto-lexicon-for-aviation/

Contrail: Building an ATproto lexicon for aviation

I recently returned from a mostly offline trip and was catching up on some digital tinkering when I decided to add AT Protocol publishing to this blog and subsequently fell down a bit of a rabbit hole. As someone who's been extremely online since I was around eleven, I've always been interested in protocols and...

ianservin.com

Ezra S@ezra.zone · 3w ago

I would like to read a deeply researched essay by a smart media historian on the use of jump cuts before and after the advent of YouTube.

BioVie Inc@biovie.bsky.social · 4w ago

The Phase 2 ADDRESS-LC trial evaluating bezisterim for the treatment of neurological symptoms of Long COVID is fully enrolled with topline results expected in late summer 2026.

BART@bart.gov · 4w ago

Disability Pride Month is a reminder of how far accessible transit has come and a recommitment to the work still ahead.

Bild
betsy ladyzhets 😷@betsyladyzhets.bsky.social · 4w ago

If you appreciate our independent journalism at The Sick Times, please consider starting a monthly donation to help us keep this work going! And as a bonus, we'll mail you these incredible stickers --

The Sick Times@thesicktimes.org · 4w ago

There's less than a week left to snag this exclusive sticker pack — designed by designed by Dimitrea Tokunbo and Grae Salisbury — when you become a Sick Times Supporter! Join today and help us keep our vital Long COVID journalism going! the-sick-times.fundjournalism.org/donate/

Thermometer graphic in which The Sick Times' fundraising goal is represented by a row of pixelated hearts, as you might see in an old-school video game. The hearts are all black outlines, and the first one on the left is filled in with a little bit of red. Text above the hearts reads: "The Sick Times - Goal: 200 new monthly supporters." Underneath the hearts, there is a cartoon drawing of a field with flowers.
Marcin Wichary@aresluna.org · last mo.

I know software updates can be exhausting these days. On top of regular weariness of things changing, there’s stuff like Liquid Glass, or thoughtless AI integrations. So, I’m curious: What is the recent software update, anywhere, that made you happy?

Ezra S@ezra.zone · 4w ago

well, it happened: i have now taken cancer drugs (as part of a clinical trial) to see what they do for my long covid.

Jessica Ellis@baddestmamajama.bsky.social · 4w ago

Would you like to all hear the most absurd and bizarre and possibly ridiculous health update? So. For almost two years now I have been developing a reaction to all but a couple foods. One spot in the back of my mouth itched like CRAZY, and sometimes it would cause a spasm.